I am TERRIBLE about writing now, just because I am out enjoying life. I feel great these days and think it is
stupendous that feeling good has become the norm! I am still doing the feeding tube thing, but I am able to eat soft foods now. No meats, yeast breads, fresh veggies or anything crunchy, but the world feels like there is a multitude of possibilities out there. I am just having a blast figuring it all out.
I do still feel a bit like I am in the twilight zone still though, because I am counting calories to keep them UP. How weird is that?! I will most likely need to work with a nutritionist to get all the way there, but that feeding tube thing and its days of tyranny are coming to an end (oooo I feel like such an anarchist!).
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POWER TO THE PEOPLE!!!! um... I mean BIRDIES!!! |
In all honesty, I still struggle with that lactose intolerance thing but with lact-aid, lactose free milk, and lactose free nutrition drinks (and yes I found some of those) I am learning how to deal. Just know if you ever go somewhere with me and I bolt for the bathroom, I am trying to spare all of us some major unpleasantness...
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yeeeaaaaahh....best if I leave this one sans caption... |
These days, I have been fully keeping up on my laundry and housework (
holy crap I AM an alien!!!!), doing all the kids homework and therapies, taking the dog on daily walks and playing fetch with him at the local dog park, shaved and bathed him, made chocolate chip cookies to put in the freezer so I can warm them up when the kids get home from school and even made shaved ice for the kids when they were feeling bad about not having "snow days" in Southern California AND I have made dinner every night of the week (except once when I asked Cary to do it, just cause I knew he would and I was feeling lazy).
Life is good.
Jo Marie (remember she is the surgeons nurse practitioner) showed me her psychic side once again today and called me about 20 minutes before I had time set aside to call her! It really is almost freaky how she does that. Anyway, we talked about getting my 6 month PET scan set up. Can you believe it has been 6 months since the surgery?! I know, it blows my mind too!
Anyway, after the PET scan, I will go in to see Dr Soukiasian again and hopefully we will discuss a plan to get said evil feeding tube out. Ok so maybe it isn't EVIL per say, and it has kept me alive just fine. It isn't painful (except when I rip stitches, but then that is kinda my own fault), it just slows me down (...pooooor maligned feeding tube) . I am just so anxious to get the silly thing gone so I can take Jonah to Legoland for his birthday. If it isn't gone by February (oh. Dear. Lord. forbid that) I am gonna take him anyway.
2 comments:
I've never had a feeding tube or any of the other stuff you're going through, but I can sympathize with the lactose intolerance. I became lactose intolerant when I had stomach surgery 20+ years ago. I can promise you that before too long you won't even miss the milk stuff. I used to buy all the lactaid products, but eventually you just don't crave it any more. I truly don't feel picked on or sad that I don't eat dairy any more--it is just my normal. Good luck adjusting to your new normal.
:) I look forward to that day
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