OK I am a bit daft sometimes, but ya really can't blame me.... ok maybe you can. I mentioned I have been having trouble swallowing. I felt that maybe I was just being a woose, (huh, wonder the real spelling on that one, spell check will NOT accept it...) SO like the brilliant person I am, I decided I would just push through it. I tried to eat a tiny piece of really soft flaky fish (yummy on the tongue BTW, Cary is a great cook).

It got hopelessly stuck.

It was a full day before I could even get water down, and took 2 days to completely go down. Bah...  I just want to get better. I spoke with the nurse who said it was possible my new "stomaphagus" (wish I could claim credit for that wonderful word, but found it on a EC chat site)  is having a spasm (hold the spaz jokes please).

We are giving it a week to see what happens.

Oh, and Cary fixed my chair :)

can I just say this feeding tube thing is getting old, and I broke the big recliner I have been sleeping in since I got home. grrr....

I shouldn't complain, I am doing better and better every day, even though swallowing is anything semi solid is still a challenge.

But all in all, 

I will survive  :)

added a couple more favorite links on the side bar...

Dr appointment went well, Met my PCP for the first time. Way back when, when I was arguing with the insurance, trying to get the care I needed, he was kind enough to just sign referrals with only reading my medical reports, not seeing me. (time constraints) . He seems very thorough and likable enough. He just kept saying "wow" when we were telling him a bit about the treatments I had gone through. He also made the comment, " I am glad I am seeing you after all this is over!".

I am just glad all this is over... well mostly...

I was so excited!  I actually ran some errands this weekend ( ok walked really slow, but whose counting...). Cary drove of course, but just getting out of the house was wonderful. I was a bit done in though afterward but hey, I will take what I can get.

I REALLY tried to make it to church Sunday, but my body just plain vetoed that one. I am going to try again next week.This time I am really going to take it easy on the weekend so I can have all that energy on the Sabbath.

I am getting better and better every day now and seriously, the thing that hurts the worst  is the wound in my neck, so that is a HUGE improvement over chest tube and drain holes.

Both drains came out yesterday!!! Only the feeding tube left now. I am in the home stretch of healing...although it still is hard to swallow anything but liquids or semi liquids. I am sure that will come as well.

still boring.... HOORAAYYY!!!!  I have an appointment on Thursday and understand that at least one of my drains will be removed. Jo Marie (remember, she's the surgeon's nurse practitioner) said they might wait a week before they take the other one out. Woo hoo!! then there will be only the feeding tube.

 

Ok so maybe my drains aren't THIS big...

Last couple of days have been extremely boring, (thank you for all those wishes of boring-ness) with the exception of one little earthquake... It was only a 5.4 and the epicenter was a good 30 or 40 miles away, but it was enough to spark bedtime discussion with small boys. It was also pretty funny that little Ben could not WAIT until dad got home from work to tell him all about it and how " shaky shaky" it was. We are all  fine and dandy, but it did make me think that as soon as I get feeling a bit better, I need to get my emergency preparedness kit up to speed. Right now with all the craziness, I have no idea even where our poor ravaged, picked through kits even are! (looks like I still need those boring days to continue into the long distant future...)

 Here at the new house I kept smelling something really bad up in our bedroom. Well, I finally tracked it down...  Remember what a wonderful Easter my boys had? well, as you may remember the move happened right after that and the Easter stuff got all packed up and shipped off to the new house. Except that some of the Easter baskets still had boiled eggs in them. Yum....

Ok I have a very dear and beautiful friend from Virginia who gave me the BEST idea.

Remember how I was lamenting about how yucky it is to not be able to wash my hair? OK if I didn't on the blog, I sure did in person...   I can't get in the shower because of the drains and tubes still in me and I can't bend over the sink or tub because it is just too excruciating. The hospital has a shower cap thingy that does a "dry wash) but since I wasn't able to rinse, after about a day or so, my hair felt sticky and grungier (is that a word?) than before.

I have another sweet friend who came and picked me up once I got home from the hospital, took me over to her home where she has an in home hair salon, and washed my hair for me. It had been over two weeks and I started to bawl it felt so good. To top it off she also cut and styled it for me and I felt very loved and very spoiled. I will be forever grateful for that act of kindness.

I can't do that all the time though so my hair is once again taking on a smelly life of its own. Well, my sweet friend from Virginia has had many health issues ever since she was a young girl (she was sledding and crashed into a tree, paralyzing her from the waist down ). She has worked hard to overcome so much and I admire her no end, but unfortunately she has had to spend a lot of time in the hospital. She is amazing though and is even sweeter and more loving than she was before the accident ~ and that was pretty hard to do let me tell you!!! She has the most amazingly beautiful long hair, and her friends came up with a way to help her keep it clean.I saw a pic of it on her facebook page and thought it was magnificent! 

She put her head over the side of the bed letting her friends support her neck. Then her friends placed a small clean plastic trash can directly under her head. They washed her hair using the trash can to catch the water and soap. I bet a towel under the can would make sure there were no big messes to clean as well.

I think it is brilliant and if you ever want to give a service to someone who has been hospital bound for so long, this is one any one can do, AND it will be appreciated so much more than you can even imagine.

Haven't posted in a while, just out of pure laziness I guess.
Lets see to catch up...
*I got my feeding tube clogged again, but thank heaven Cary got it unstuck by brute force. I couldn't have done it, I am a big wuss! ...

* Got permission from the doctor to put that blasted Nexium (the culprit in the clogging capers) into applesauce and eating it instead of putting it in through the feeding tube. (all pills had been being crushed, mixed with water and shot it directly into my intestines (ewww... BTW).


*finished up all my antibiotics so all I am on now is the aforementioned evil Nexium, a med to help keep my heart rate down ( Lopressor) and my pain meds (which I am trying to go without for longer and longer periods of time. So far, haven't been too successful at that, but working on it).

* Aunt Maralee took the kids to Sea World and they LOVED IT. Thank you so much Aunt Maralee and all the cousins who made it so fun for them. Jonah couldn't quit telling me about the walrus with HUGE teeth ~ but it was ok because he was nice...And Ben was MOST impressed with the sword he got as a souvenir. He showed me all his "secret moves"...


*Oh and the final pathology report came back. All my margins (the area around where the tumor was removed) are completely clear. I am COMPLETELY cancer free ~ officially.