This site is to help anyone who might have esophageal cancer get another point of view ~ Also it is to help my family know what the crap is going on when I don't call for days at a time... loves and kisses from a sick chick. UPDATE: I am no longer a sick chick! Now I don't call for days at a time just cause I am out and about and raising my boys :)
Showing posts with label eating. Show all posts
Showing posts with label eating. Show all posts
Tuesday, December 28, 2010
Well, I can swallow any darn thing I want now (excluding car parts or carpet remnants, but you know what I mean...) but the trick is to make sure I eat tiny meals all through the day. If I eat too much at one setting I actually get really uncomfortable. I also have learned that I really aught to drink liquids at a different time than a meal so my stomophagus doesn't get filled to quickly. I also have trouble with high refined sugars or high fat items as it either gives me gas or makes my tummy hurt ( I am assuming because those items are harder to digest?). I just have to get used to a different lifestyle of eating. I really am OK with that, and to tell you the truth, it is a much healthier way to live anyway. I just have to figure this out and still get my calories I need in.
As far as how i am feeling these days, we have a trip to Disneyland coming up so I must not be doing too bad! Thanks Bub, we are so happy with our Christmas present! I will post pics as soon as I get them. :)
BTW, just for the record, I would totally win the "my scars are better than your scars" competition thingy guys love to do. Today I am posting pics to show just my bruises from the last balloon animal party. I guess because of the Chemo I did, my veins are a mess. I am now what the nurses like to call a "hard stick". They like to roll around and go flat and when one is finally wrangled into submission, they like to imitate tires running over a spike strip. I am told it is because they have such thin walls now. I took pics so I could show off before they fade completely. Which BTW is a wonderful thing that it is fading... both on my arm AND from memory...
Sunday, December 26, 2010
When I went in for my last dilation I forgot to ask Dr. Lo to stitch Dolores back in. Dang it. I think I will just give up on that one. She is still free as a bird. Well sort of. I have learned how to do some major strength tape-age. First I bandage her, she does still drool quite a bit. I use paper tape to secure it as that is easier on my skin. Then I loop thin strips of silk tape in a "support our troops" type ribbon, first one way then the opposite. Then I secure the ends of that and voila! It stays put. And without the bullet proofing! That was getting a little expensive as I need to change the dressing at least once or twice a day. Have you seen the cost of medical adhesive tape?! I should have taken out stock in 3M!
Also I am not as nervous about her popping out because now I know how to disinfect and just push that little Miss Priss right back into place (...teach her to mess with a momma!). Funny how perceptions change huh.
Anyway in talking with Jo Marie, (remember the Nurse Practitioner?) she has started talking about plans to get rid of Dolores completely (ooooh.... sounds a bit nefarious...)! Right now my goal is too get my calories up to 1000 per day by mouth, then I can cut my tube feedings down by half. It is actually harder than it sounds. Right now I am up from about 400 to between 750 and 850 and it is freaking HARD! Twilight zone, alien abduction, call it what you want, it is so amazingly weird for me to be counting calories so religiously to get them UP.
I am going to shoot for the end of January to be up to 2000 per day and then goodbyepain in the a$$ Dolores! Maybe I will even have a farewell party! ..... Nah, nobody would come. It's like those office parties for a co-worker no one can stand and people show up only long enough to get the cake.
Also I am not as nervous about her popping out because now I know how to disinfect and just push that little Miss Priss right back into place (...teach her to mess with a momma!). Funny how perceptions change huh.
Anyway in talking with Jo Marie, (remember the Nurse Practitioner?) she has started talking about plans to get rid of Dolores completely (ooooh.... sounds a bit nefarious...)! Right now my goal is too get my calories up to 1000 per day by mouth, then I can cut my tube feedings down by half. It is actually harder than it sounds. Right now I am up from about 400 to between 750 and 850 and it is freaking HARD! Twilight zone, alien abduction, call it what you want, it is so amazingly weird for me to be counting calories so religiously to get them UP.
I am going to shoot for the end of January to be up to 2000 per day and then goodbye
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| Well mayyybe if she hadn't been such a Miss Prissy Pants, there would be Balloons! |
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